fairysparkle
|
|
Score:268 Posts:138
|
Re:Disabled and up the duff
(Date Posted:08/08/2011 1:54 AM)
Hi Noisyworld, thank you : ).
I am in bed just now with UTI that is around my kidneys. Apparently it's a pregnancy thing, as this is my second. Probably the only time I've spoken to doctor and nurses and said - I hurt a bit and I just don't feel right, and then been taken seriously.
Feeling ugh at moment, and really exhausted. Story so far with pregnancy involves a lot of medics. So good, some so-so.
The best so far was maternity physio (I know, a NICE physio, it does happen) that I self referred to. She gave me simple exercises to do, that involved tiny muscle movements to help with posture. I asked her what exercises I could on the ball I have, as I can do this with certain movements. She told me to get on it, and sit on it, and that was it. In fact, she said I was doing really well, as I know how to pace myself, and that's the thing she ends up having to tell people to do because they push themselves hard when they need to rest. Very helpful to have someone say; actually I need you to do less than you think, and your attitude is good. She told me there is a moving and handling team available and hoists for labour (although, she does sound like she is the kind of person who would make that happen, whilst not all medics remeber to communicate these needs). She will also go over labour positions I can do in advance; very helpful.
The consultant is mixed. Her side kick told me they want to consider heparin if my mobility gets worse. I already know I have no blood clotting issues, and I'm not convinced this isn't just a standard approach to wheelchair users. I know for some folk it's vital, but for me, they'd need to produce some very convincing evidence. Mixed discussions re labour. Most concerned about allergy issues; as my experience is that any break down in communication can lead to very simple mistakes being made that have huge affects on me. We had a 16 week scan the week after with the consultant and her first words were; why are you having this. I'm like, um, you're the one in charge...
Have spoken to aneasthetist and that was mixed too. There is the option of using local aneasthetic only, without opiates, for epidural if required(however, with caesarian, it's the whole lot together, no choice). I would like that; because opiates can be added after wards. I am so drug sensitive as it is, and I know opiates affect my asthma already. She kind of back tracked on that - well, I need suggestions that they will stick to. I know I can't do the whole thing without medication, and I need to be prepared for all sorts, but as low intervention as is possible would be a sensible approach. I will be using TENS, but water birth has so far been vetoed. And I'm starting accupuncture now that I will do all the way up to the birth.
There are other appointments that may happen - that sounds great, but some of them might be because they are a bit lost in understanding the allergy stuff. They were astonished that I have no ME specialist - that's right folk, there are none in Scotland, so I told them basically, I am the expert of me, lol.
Put all this detail down in case anyone else stumbles in here with similar scenario. So far am having well monitored, but fairly simple pregnancy. Although people have been very nice, it has taken a BUNDLE of assertiveness in every appointment to get across a large amount of info wiith as much clarity as possible.
Many thanks to the very kind friend who came here weekly and handed over a large chunk of second hand stuff that means the nursery is actually fairly well equipped already. Ditto the folk that say congrats, and don't pull a face and go, oh ,how will you manage? Also, full marks to the midwife who told the antenatal team, look this lady gets one to one classes, ok, she just does, and stopped them harrassing me to explain why this should be so.
FS
usertype:3 tt= 0
|
| Support us |
Create free forum and click the links below and your donations will make a difference here. |
 |
www.dinodirect.com
A Huge Online Store for Various Cool Gadgets, Accessories: Laser Pointer, Bluetooth Headset, Cell Phone Jammer, MP3 Players, Spy Cameras, Soccer Jersey, Window Curtains, MP4 Player, E Cigarette, Wedding Dresses, Hearing Aids, eBook Reader, Tattoo Machines, LED Light Bulbs, Bluetooth Stereo Headset, Holiday Gifts, Security Camera and Games Accessories and Hobby Gadgets.
|
auntieCtheM
|
|
Score:731 Posts:370
|
RE:Disabled and up the duff
(Date Posted:08/08/2011 1:49 PM)
I'm so pleased that things seem to be going so wellfairysparkle. Thank you for keeping me up-to-date with what is going on. I'm agog, having never had a baby and am hanging on your every word. big hug.
usertype:3 tt= 0
|
thekumquat
|
|
Score:11 Posts:6
|
Re:Disabled and up the duff
(Date Posted:08/08/2011 2:41 PM)
Congratulations fairysparkle!
I've just got to 12 weeks myself so thought I'd register here and say hello given people on Ouch! were really helpful when I was pregnant last time round and ended up using a wheelchair (bad SPD) and was pretty wobbly and had hand problems to start with. I'm currently doing lots of physio and osteopathy in the hope that my pelvis might not fall apart as badly this time, but it doesn't seem to be working.
Things I found really useful: Swaddling blankets - some lovely crocheted ones but mainly pieces of sweatshirt fabric - I could lie the baby on one and then pull him closer to me, pick him up easily in the bundle, and use the fabric to tuck him neatly under my arm when going down stairs holding on with both hands. I plan to get a sling this time. A towelling bath slope - lay baby on it in the bath, baby can't roll off and head is kept out of the water. You can put a baby bath on top of a flat-topped baby bath to make it a better height.
Most useful was advice from a friend with several kids: Don't bother bathing your baby until you think at least one of you is going to enjoy it! Washing them with a warm flannel will suffice. Equally it's not compulsory to do up every popper on babygros, and putting them in one a size larger makes it much easier when small.
A 'My Brest Friend' feeding cushion - it's firm and flat but you can fasten it round you when feeding, so you have both arms to help manoevre baby and your breasts and don't need to hold the baby's weight. Other V-shaped cushions just fell everywhere, though sitting at a desk helped hold them in place and I could surf the net at the same time.
A bright post-it taped to the front of my notes with warning that I am deaf and need to be fetched for my appts as won't hear. And then another one warning I couldn't separate my legs and any exams must be done seated or lying on my side - suggested by one fab MW who told me not to bother getting up as they have to learn to do seated exams when training and it's good to practise.
A birth plan summarising all the important stuff about me in one side of A4 bullets. So had a para on I am DEAF, I am ALLERGIC to THIS, THAT and the OTHER, I have SPD and CANNOT put weight on my legs or separate my knees more than 25cm, etc. Which seemed to work as most of the staff were given a copy of that to read rather than my notes when I was in labour!
After a bit of discussion with the Supervisor of Midwives it was agreed I should keep an interpreter (my partner or friend) with me at all time, and having two blokes with me in the labour ward helped as while there was a hoist in the birthing pool room, the other rooms either didn't or it was easier to shift me about with my partners doing it. I couldn't fault the labour care at all.
Postnatal ward - take food with you. Even if you don't have food allergies, the food may not get brought to you, it may be gone by the time anyone tries to get you any, and if you're hungry outside mealtimes you need something. Do not expect much care on a postnatal ward - aim to get home with your baby ASAP!
Also research where all your local baby groups, breastfeeding advice groups etc are, as health visitors may not have the info and don't know anything about other boroughs. SureStart centres are generally really helpful even before birth. And tend to be in modern accessible buildings.
Hope some of that lot is helpful!
usertype:6 tt= 0
|
Noisyworld
|
|
Score:1150 Posts:576
|
RE:Disabled and up the duff
(Date Posted:08/08/2011 4:57 PM)
fairysparkle I think you might have just found your fairy birth-mother a.k.a thekumquat 
JIC...are there any mothers with noise-sensitivity out there? I have never even considered kids because I think it would be a MAJOR problem (plus I haven't found a bloke daft enough to take me on )
usertype:3 tt= 0
|
WheeledTraveler
|
|
Score:47 Posts:24
|
RE:Disabled and up the duff
(Date Posted:09/08/2011 7:00 PM)
I have no advice, but I wanted to say congrats!
usertype:3 tt= 0
|
hossylass
|
|
Score:1400 Posts:718
|
Re:Disabled and up the duff
(Date Posted:10/08/2011 2:10 AM)
Ooooh our first Ouch Too babies! I am, although totally non maternal towards babies (they frighten me a bit) very excited about the news.
Hope it all goes well for you both.
usertype:6 tt= 0
|
fairysparkle
|
|
Score:268 Posts:138
|
Re:Disabled and up the duff
(Date Posted:10/08/2011 8:29 AM)
Thank you SO much for recent posts; as soon as am a bit better will answer in full. theKumquat; your post was fab, very helpful. yes, you sound like a fellow fairy : ).
Soon as it pops out, you can all come round for a cuddle. It don't matter if your nervous; we will be too! FS
usertype:3 tt= 0
|
thekumquat
|
|
Score:11 Posts:6
|
RE:Disabled and up the duff
(Date Posted:16/08/2011 4:24 AM)
Heh. Where's my magic wand...
Noisy - it may depend on what noises you are sensitive to, as autistic auntie visits regularly and finds baby/toddler noise is fine but certain noisy toys have to be hidden for the duration as she can't stand them.
Exposure seemed to help us - pre-kids I'd often tense up when I heard howling (not particularly sensitive unless it sets my hearing aids off) but now MrKumquat and I can go out for dinner and if a child screams we both go "Aaaah... a screaming child and it's not ours! How wonderful!"
Some crowded baby clinics or soft play centres are hell on earth for everyone and many parents have earplugs...
*fairy* - my only other tip is practise responding to people who tell you what to do with your baby by smiling sweetly and going "Awww... they're all different, aren't they?" Especially ones who say you must/must not have a routine, wean them, feed them xyz, leave them to cry/never leave them to cry, etc.
Getting a sling to put your baby in is supposed to solve many problems (don't need to put them down, don't strain arms picking them up and holding them for ever, makes them happy) but I never got round to trying it myself until the quatlet was too heavy for my back. Will try this time round.
I've been signed off work for a few weeks as I keep fainting and need to lie down. Trying to decide if I'm up to filling in a DLA application form - seems to be if you're not depressed when you start, you will be by the time you finish. :(
usertype:6 tt= 0
|
Ex-member
|
|
|
Re:Disabled and up the duff
(Date Posted:16/08/2011 6:40 AM)
" Especially ones who say you must/must not have a routine, wean them, feed them xyz, leave them to cry/never leave them to cry, etc."
You should wean them when the baby is ready - same as coming out of nappies, daytime naps, ect.
|
Noisyworld
|
|
Score:1150 Posts:576
|
Reply To thekumquat
(Date Posted:16/08/2011 4:40 PM)
Reply to thekumquat (16/08/2011 10:24 AM)
Heh. Where's my magic wand...
Noisy - it may depend on what noises you are sensitive to, as autistic auntie visits regularly and finds baby/toddler noise is fine but certain noisy toys have to be hidden for the duration as she can't stand them.
Exposure seemed to help us - pre-kids I'd often tense up when I heard howling (not particularly sensitive unless it sets my hearing aids off) but now MrKumquat and I can go out for dinner and if a child screams we both go "Aaaah... a screaming child and it's not ours! How wonderful!"
Some crowded baby clinics or soft play centres are hell on earth for everyone and many parents have earplugs...
I'm sensitive to...pretty much everything and ear-plugs just give me a different headache 
>Trying to decide if I'm up to filling in a DLA application form - seems to be if you're not depressed when you start, you will be by the time you finish. :(<
I know that feeling very, very well  
usertype:3 tt= 0
|
danslatete
|
|
Score:236 Posts:121
|
RE:Disabled and up the duff
(Date Posted:17/08/2011 5:16 AM)
I am so excited for you all having babies!! Mine are 16,13 and 10. I love the new baby smell, i hated the lack of sleep but i survived and i kept on going back for more!!
Kumquat(?) I had SPD with all of my pregnancies, unfortunatley it got worse each time and i ended up having my youngest at 36 wk 4 d. due to the strain on my pelvic floor. He was a lump mind you at 9lb 8oz. I had the wrap around elasticated splint thing and had to wear that for almost a year post birth, I also had to use crutches and a wheelchair. I had a sling and a carrycot upstairs and down and car seat stayed in the car. I bathed the baby as and when needed usually in the kitchen sink untill size ment a bath upstairs was needed. Its amazing how you adapt many items for use as you go on!! Oh and i concur with the' nod and smile each are different' advice. Could have saved my sanity after my first baby.
Looking forward to sharing the journey with you both.
Congratulations
usertype:3 tt= 0
|
DeusExMacintosh
|
|
Score:187 Posts:94
|
Reply To fairysparkle
(Date Posted:17/08/2011 7:03 AM)
Reply to fairysparkle (04/07/2011 10:21 AM)
Hi everyone, delighted to share I had my 12 week scan, and can now reveal the big bump under my top is not in fact a pie fest aftermath.
Looking for other mums who have managed to find solutions re baby care when they have wobbly arms, legs, etc. I have ME, fibro and am wheelchair user (electric outside of house, can use stick inside home as is laid out beautifully for wobbly legs with many stools and seats in appropriate corners).
Also, am aware for some folk this can make painful reading - we were TTC for 21/2 years and are aware that coping with fertility issues is really tough. A hug to those for whom having a family is a dream they hope for.
FS x
Very best wishes to you both. I can't imagine having kids as I'm barely capable of looking after myself and a labrador let alone my own fella, let alone kids on top!
usertype:3 tt= 0
|
thekumquat
|
|
Score:11 Posts:6
|
Re:Disabled and up the duff
(Date Posted:13/11/2011 10:00 AM)
Hello again fellow pregnant ladies - how are you all doing?
I'm 26 weeks now and my pelvis is hanging together reasonably well - I can walk slowly for 20 min twice a day, but no more than that. On the less good side, my shoulders are playing silly buggers and I've been off work for much of the last 3 months as kept fainting and falling over etc. But the baby seems fine so far, just likes kicking my bladder all night...
We have acquired a rocking chair too which is great. Just need to decide if I would prefer to have a terp with me on the postnatal ward in which case I'd be put in a private room, or if I'm less likely to get neglected in with other women (but can't have male partner there out of hours). Hopefully all will go well and I can give birth and run away ASAP!
usertype:6 tt= 0
|
auntieCtheM
|
|
Score:731 Posts:370
|
RE:Disabled and up the duff
(Date Posted:13/11/2011 2:28 PM)
Oh I am so pleased that you are managing OK. All the very best. (Message edited by auntieCtheM On 13/11/2011 2:28 PM)
usertype:3 tt= 0
|
|
|