Ex-member
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Re:Condemned to wheelchair
(Date Posted:11/07/2011 4:58 PM)
That makes it sound so negative.
Not saying that being a wheelchair user is a bad thing - I guess for many wheelchair users, it gives them so much more freedom.
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CrazyKim
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Re:Condemned to wheelchair
(Date Posted:11/07/2011 10:08 PM)
"Condemned" Sounds like he's getting life in prison rather than a wheelchair...
Wouldn't say that the idea of transplants is a bad thing, I'm sure there are a lot of people who would jump (figuratively, lol) at the chance.
It is however a very poorly worded article
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pennycillin
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 3:16 AM)
im condemmed to wearing glasses... but it means I can see :)
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SunshineMeadows 
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 3:25 AM)
The articles use of the word condemned is unecessary, what they should have emphasised more is that fact the patients 'amputation is so high that there is really no space to fit a prosthesis'. I dont know enough about wheelchair users who have lost limbs but logically speaking I would have thought there if not enough of this patient's limbs left to fit a prosthesis then the patient is going to have more difficulty than many other wheelcahir users. For example, less to sit and balance on.
Articles like this are likely to make members of the general public think science can fix disabled people more than is actually possible. Coupled with that I wonder how much investment has gone into this and how much it all costs. Wouldn't the cost of the operation keep it a rare occurence.
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CrazyKim
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 3:42 AM)
"im condemmed to wearing glasses... but it means I can see :)"
:) Well put!
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RoseRodent
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 4:27 AM)
Reply to SunshineMeadows (12/07/2011 9:25 AM)
Coupled with that I wonder how much investment has gone into this and how much it all costs. Wouldn't the cost of the operation keep it a rare occurence. |
Probably a one-off, or a selection of 5 worldwide. It's arrogant self-serving doctors wanting to challenge *themselves* using the patient as a guinea pig through which to present themselves with that personal challenge. Once it's proven possible and written up all over the place as the first then we will have only "Europe's first" (excuse for doctor to fly to the USA and get training) then "Australia's first" (US and European doctors fly to Oz to carry it out with a third surgeon desperate to challenge himself) and then the whole thing will quietly go away because it's too costly to be popularised and not good enough to make the papers any more.
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Ex-member
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 5:10 AM)
Reply to pennycillin (12/07/2011 10:16 AM)
im condemmed to wearing glasses... but it means I can see :)
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Same here. To me, equipment like this is more helpful than unhelpful.
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SunshineMeadows
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 5:18 AM)
Rose,
Well said :-)
Penny and Sofie,
Yes I see what you mean. The way the article puts it is like the wheelchair stops the person doing more rather than his loss of limbs causing the disability.
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SunnyClouds
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RE:Condemned to wheelchair
(Date Posted:12/07/2011 6:18 AM)
I hadn't thought about high amputations causing problems sitting in a wheelchair.
Partly my attitude towards this is coloured by the fact that I'm a bit
squeamish about the idea of chunks of other people being sewn on to me,
but I might feel very different if I was actually faced with having had
very high amputations.
My first thought, for some reason, was buses. I thought how you could
say it's a problem to get on and off a bus in a wheelchair and then I
wondered how stable someone would be on transplanted limbs. By
extension, I wonder how much better they'd be for climbing kerbs? Maybe
the big difference would be stairs. Now that would be a big freedom.
But how many people is that an issue for?
I'm also interested in the comment above about cost. I can't see such
ops becoming popular over here because of the need for cuts in many
areas of the NHS to find money for more old-age care.
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escapecommittee
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 8:16 AM)
I just hope the legs they have stuck on the poor guy are human
although having ostrich legs would come in handy
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Ex-member
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Re:Condemned to wheelchair
(Date Posted:12/07/2011 8:53 AM)
lol!
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fairysparkle
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Re:Condemned to wheelchair
(Date Posted:13/07/2011 8:08 AM)
Oh, my lord, that makes being bound to it actually sound a bit of fun.
It's just a piece of equipment. It's just an alternative way of getting around. It only really sucks because you do get treated odd, and people will argue forever rather than admit they should make a property, shop, etc more accessible.
It's not the chair that's a condemnation; it's meeting attitudes that'll strip your breath away.
The biggest difference between glasses and a wheelchair? Cost.
The biggest difference between you and me? You are standing. I am sitting. You get a free peek down my top. I see you have questionable taste in trousers. Also half the world is my oyster, but that's mainly because the other half is not accessible yet. Also, I have to be very polite, and smile, and talk slowly back if you will not grasp that I am about to run you over because you seem to think you don't have to move your feet to let me off the bus, people, and that shocks you because nobody is supposed to speak up from a sitting position. Also, folk don't stroke your arms because you look, er, I have no idea; folk just stroke you and say, aww, poor thing.
One week trial for all people who are wheelchair sceptics; let them know just how much fun it is to be stroked, and awwed, and poor soul condemned to that contraption...and they'll be begging for you to talk to them on the same level, and stop being so negative.
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JLRRAC
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Re:Condemned to wheelchair
(Date Posted:13/07/2011 8:57 AM)
Perhaps if all goes well with these leg transplants we might see in the future companies being set up offering customers choices of legs, salesman to customer, 'Are you a leggy sort of person? Oh goody we have just the legs for you, came in this morning fresh from the scene of that terrible car crash up the road', 'We have a special offer on just now, buy one get one free'
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oldtone27
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RE:Condemned to wheelchair
(Date Posted:13/07/2011 10:20 AM)
I love the idea of buy one leg get one free! 
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CrazyKim
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Re:Condemned to wheelchair
(Date Posted:13/07/2011 10:24 PM)
"You get a free peek down my top. I see you have questionable taste in trousers."
lol
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GioGio
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Re:Condemned to wheelchair
(Date Posted:14/07/2011 12:49 AM)
Until I got my wheels my every step was a continual agony but since that day I can not only get out of the house to enjoy life more but also with so much less pain. Since my disastrous surgeries I can no longer trust any surgeon to rectify any problems that occur so my wheelchair is/are my legs now and I refuse to let it get me down.
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paddyodoors
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RE:Condemned to wheelchair
(Date Posted:14/07/2011 3:24 AM)
It is interesting to see views and experiences of other wheelchair users.
I have never been stroked or awwwed over, nobody has ever seemed surprised to see me talking from a sitting position in fact apart from the odd occassional reaction from some thick numpty my experiences as a wheelchair user or being wheelchair bound is generally positive.
Why do some wheelchair users get the negative side of things when others seem to experience more positive things. Is it where you live, attitude, demeanour...whatever.
It obviously happens and some negative and positive things are happening..but why to some and not others?
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fairysparkle
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Re:Condemned to wheelchair
(Date Posted:14/07/2011 9:01 AM)
Hi paddyodoors
I think its luck of the draw. I've had times of nobody bothering their button I was a wheelchair user, and periods of despair where it just felt like a stream of oddness coming my way. Sometimes its to do with the age of a person you are dealing with. I've only had a few strokers, but its made me much quicker off the mark now. I reckon its a bit like gaydar - I can tell quickly if that person is talking to me as an adult or someone they pity. I'd say it wasn't the majority of the time, but when it does happen, it can take your breath away - particularly some folk, who really should know better than make very personal remarks.
I've been a wheelchair user on and off twenty years, and it wasn't till two years ago I got my first stroking; I had no idea that could happen, and was shocked that another adult would think it was an acceptable way to treat another adult.
I'm fairly assertive, and I won't stay in a conversation if I realise they are being rude (so tell me what's wrong with you, can you walk at all?), so I think appart from the times I haven't reacted quickly enough and escaped, you can do everything as cheerfully and as positively as possible, but it still is possible to run into a pretty dire response.
I think I am more aware of how much difference it makes to other folk too, and there have been times I have felt so sad because I know that's the way that person would be with any wheelchair user. If you have had mainly positive experiences, that is great, but I think most people will have some story to tell of breathtaking remarks. It's important to talk about both kinds of experience, because just knowing I was not alone in having to deal with tactless or rude people made it easier to cope with.
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Ex-member
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Re:Condemned to wheelchair
(Date Posted:14/07/2011 9:07 AM)
I wonder if your age is relevant to this? Not a wheelchair user; but have been talked to like I'm a child. I'm perfectly capable of talking to people and understanding them. OK, there are a few who I can't understand. However, that is down to their accent and not my disability.
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fairysparkle
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Re:Condemned to wheelchair
(Date Posted:14/07/2011 9:19 AM)
Sofie, what age do you think this would be relevant? I am in my thirties, and I have used a wheelchair on and off since the age of nineteen. To put this into context during the time I was able to work, but was very unwell, I was a manager. I know how people talk to me with the same illness, but I was more mobile - the only difference now is I use a wheelchair. That's what makes it so oh my gosh, because there is no other factor than that. I am a coherent, and competent speaker who knows the difference between life up right and life with wheels.
Its perhaps not very helpful to look at other factors too much, as it implies that there is something a person does to attract comment. I am talking complete strangers coming up and making random remarks. That happened when I was a teenager as well as just now. It can just be who you meet on a particular day and how they respond to you.
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Dark_Divinity
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Reply To fairysparkle
(Date Posted:14/07/2011 10:10 AM)
Reply to fairysparkle (13/07/2011 8:08 AM)
Oh, my lord, that makes being bound to it actually sound a bit of fun.
It's just a piece of equipment. It's just an alternative way of getting around. It only really sucks because you do get treated odd, and people will argue forever rather than admit they should make a property, shop, etc more accessible.
It's not the chair that's a condemnation; it's meeting attitudes that'll strip your breath away.
The biggest difference between glasses and a wheelchair? Cost.
The biggest difference between you and me? You are standing. I am sitting. You get a free peek down my top. I see you have questionable taste in trousers. Also half the world is my oyster, but that's mainly because the other half is not accessible yet. Also, I have to be very polite, and smile, and talk slowly back if you will not grasp that I am about to run you over because you seem to think you don't have to move your feet to let me off the bus, people, and that shocks you because nobody is supposed to speak up from a sitting position. Also, folk don't stroke your arms because you look, er, I have no idea; folk just stroke you and say, aww, poor thing.
One week trial for all people who are wheelchair sceptics; let them know just how much fun it is to be stroked, and awwed, and poor soul condemned to that contraption...and they'll be begging for you to talk to them on the same level, and stop being so negative. If you go along with this and let people treat you like this then you are just as bad for letting them touch you and talk to you like you are simple and in need of pity, in my opinion. What do you think their reaction would be if you turned around and asked them if they want a slap for touching you?
(Message edited by Dark_Divinity On 14/07/2011 10:48 AM)
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fairysparkle
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Re:Condemned to wheelchair
(Date Posted:15/07/2011 4:48 AM)
Dark divinity, please get your facts straight before posting
Do you think that I don't respond to people who treat me this way? Do you think any of the posters on Ouch don't stand up for themselves?
Do you realise what you are implying is as bad as saying to someone - oh, well, you got bullied, it MUST be your way of dealing with it that causes that?
Come on, give me some credit. I wrote an honest appraisal of incidents that have happened when I have been out and about doing stuff. My husband will tell you I am not backwards in coming forward - I have told people what I have thought, and I have responded very well in situations that would tax the most assertive of people.
I do not have a problem with speaking up; I am basically highlighting how there is a difference in attitudes from people because they sometimes do percieve a person using a chair as different. Seriously, before you post a personal remark like that again, try and think how it comes across; the bottom line is this, unless you know how I responded to these situations, then don't presume I haven't already done what you are talking about.
Implying that it's my way of handling myself causes any of that is frankly damaging and untrue. You can be as assertive as is humanly possible, and act as you are suggesting, and still be given cheeky remarks. None of my posts would suggest I am somehow the wee soul in the corner who does not stand up for herself. That is insulting.
Next time you are out and about, think what you would do if a stranger sidled up and started patting you in the arm, and talking to in an oh dear kind of way - I never said I sat back and just let that continue, I only mentioned it happens. Believe me, when that happens out of the blue, you can be shocked that folk act like that. It made me appreciate that there are other disabled adults who are patronised and belittled more regularly than I'd appreciated before. Please try and see what I am saying is purely a relflection on that.
I think it's clear form what I previously posted that I do not think it's helpful to point at anothers behaviour, and say, well, that must be the issue. I wish that were not true, but as I've already explained; I have had the same illness 20 years, and I have been saddened that I have had people treat me different from when mobile to being in a chair, probalby because they feel more pity, and feel more awkward. Now doesn't it make sense to focus on the actual issues without making personal and erroneous remarks?
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Dark_Divinity
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Reply To fairysparkle
(Date Posted:15/07/2011 6:52 AM)
Reply to fairysparkle (15/07/2011 4:48 AM)
Dark divinity, please get your facts straight before posting
Do you think that I don't respond to people who treat me this way? Do you think any of the posters on Ouch don't stand up for themselves?
Do you realise what you are implying is as bad as saying to someone - oh, well, you got bullied, it MUST be your way of dealing with it that causes that?
Come on, give me some credit. I wrote an honest appraisal of incidents that have happened when I have been out and about doing stuff. My husband will tell you I am not backwards in coming forward - I have told people what I have thought, and I have responded very well in situations that would tax the most assertive of people.
I do not have a problem with speaking up; I am basically highlighting how there is a difference in attitudes from people because they sometimes do percieve a person using a chair as different. Seriously, before you post a personal remark like that again, try and think how it comes across; the bottom line is this, unless you know how I responded to these situations, then don't presume I haven't already done what you are talking about.
Implying that it's my way of handling myself causes any of that is frankly damaging and untrue. You can be as assertive as is humanly possible, and act as you are suggesting, and still be given cheeky remarks. None of my posts would suggest I am somehow the wee soul in the corner who does not stand up for herself. That is insulting.
Next time you are out and about, think what you would do if a stranger sidled up and started patting you in the arm, and talking to in an oh dear kind of way - I never said I sat back and just let that continue, I only mentioned it happens. Believe me, when that happens out of the blue, you can be shocked that folk act like that. It made me appreciate that there are other disabled adults who are patronised and belittled more regularly than I'd appreciated before. Please try and see what I am saying is purely a relflection on that.
I think it's clear form what I previously posted that I do not think it's helpful to point at anothers behaviour, and say, well, that must be the issue. I wish that were not true, but as I've already explained; I have had the same illness 20 years, and I have been saddened that I have had people treat me different from when mobile to being in a chair, probalby because they feel more pity, and feel more awkward. Now doesn't it make sense to focus on the actual issues without making personal and erroneous remarks? Sorry, I meant to change it to make it clear that I wasn't making a personal remark and to make it clear that it was a generalised remark. Sorry if I upset you. I should have remembered to edit the post and make it clear that is wasn't a personal remark aimed solely at you. (Message edited by Dark_Divinity On 15/07/2011 6:57 AM)
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SunshineMeadows
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Re:Condemned to wheelchair
(Date Posted:16/07/2011 4:08 AM)
re message 12,
'One week trial for all people who are wheelchair sceptics; let them know just how much fun it is to be stroked, and awwed, and poor soul condemned to that contraption...and they'll be begging for you to talk to them on the same level, and stop being so negative.'
I once suggested to my boss that the facilities manager would better understand how difficult it was to get in around the building if he used a wheelchair for a day. I even offered the use of my second wheelchair, apparently the facilities manager was not up for the challenge. His main concern was that the installation of electric door openers did not spoil the paint work - twonk
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BronxAKJ
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Re:Condemned to wheelchair
(Date Posted:16/07/2011 7:54 AM)
A wheelchair is a tool for independence. I really do wish that the need to use one was treated as such, rather than as something unfortunate and negative.
I mean, what's more unfortunate and negative? That my legs were no longer able to take me further than 50 metres, even with the use of a cane, thus making me a prisoner in my home; or needing to use a wheelchair to get around?
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Ex-member
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Re:Condemned to wheelchair
(Date Posted:16/07/2011 9:45 AM)
Bronx - that is exactly why I don't understand why people see a wheelchair as negative.
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paddyodoors
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RE:Condemned to wheelchair
(Date Posted:16/07/2011 11:31 AM)
I don't see it as simple as that. My wheelchair is a mobility aid, it helps me get around. There are both negatives and positives concerning my wheelchair. I can get about without assistance and is obviously a great help, don't know what I would do without it, a positive However there are still many restrictions to what I can do with my wheelchair, negatives if you like. I think it is only being realistic to acknowledge both sides of the coin. I am speaking as one became disabled later in life, if a wheelchair was my main form of mobility for most of my life I may think differently.
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UUrbanblues
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Re:Condemned to wheelchair
(Date Posted:16/07/2011 11:48 AM)
'Condemned to a wheelchair' Isn't anywhere near as bad As being condemned To living under a Tory regime. Sitting in my wheelchair I can hold my head high Knowing I'm no Tory Condemning others to die. I'd rather be a wheelie Condemned to pain But, with my integrity intact Than a ruthless politician With empty heart and guilt racked.
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KizzyKazaer 
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RE:Condemned to wheelchair
(Date Posted:16/07/2011 1:46 PM)
I thought 'confined' was bad enough, but 'condemned' is even worse - it's not a death sentence
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paddyodoors
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RE:Condemned to wheelchair
(Date Posted:17/07/2011 2:23 AM)
Is Ouch 2 going to be allowed to go the way of Ouch i.e. posters using it for party political purposes? It is starting already. Insults being thrown at others who may have different political views by political activists. Can this be controlled at an early stage please.
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Close it
;)
